Some Good news & Some Bad

Just thought I would report the outcome of my visit to get my blood checked again.As you may remember I had a question mark over my last blood results at clinic so after the long weekend I attended again and had a repeat test done to see if I had CMV virus
I have to admit that I was concerned that after the negative result from my impedance test I had got off lightly and had a feeling that this blood result was my pay back.
I got my blood test done and observations and was told to ring later in the day for results.When I did call late in the afternoon I was told the news I hoped for but didn't  expect,the blood result was NAD (Nothing abnormal discovered).I didn't have any nasty virus!
I was free for another few weeks from clinic but it brought it home to me how negative I had become after all the ups and downs since my transplant and I resolved to start to search out the positives in my life and doing more to enjoy the day to day.
Other things that have happened since the clinic have been good news for some people bad for others.
My friends Tracy (@DaisyAngel52) and her husband Dave who was having problems with reflux causing damage to his new lungs. Has been successfully operated on today and is presently recovering. I hope that this will help him back to full health again and I wish him a speedy recovery.
Other people have received bad news. I learnt that @Tor87 who writes the blog Past the Point of No Return on my blog list  has received her sixth call for possible transplant that didn't go ahead I really feel for her as I know the emotions it provokes in you afterwards (my call was number 8)
She is 23 years old very unwell and suffers from CF she said on Twitter
"Just home after call number 6. Feel numb inside and in pain everywhere else. Thinking of donor x"
I really hope that the call that will transform her life comes soon and I am sure that she would appreciate some support!
 You can follow her on twitter read her blog and if you have not already signed the organ donor register, please do so here Donor register
 The man who saved my life was not much younger than me at 45 years old. I would not be writing about it now if he hadn't registered his intention to donate his organs
If you are registered send a link to a friend who isn't.Please lets make a difference for Victoria.

So as you can see I have nothing to worry about compared to others! 

Results Neutral,Blood will have to flow

Transplantation is a series of ups and downs, I have heard it compared to a rollacoaster!

Today I got some good news regarding my test for gastric reflux I was told that the sensor that I had to carry for 24hours had resulted in a normal reading of PH in my oesophagus and therefore there was no need for any intervention.I breathed a sigh of relief, but maybe a bit too soon as you will see later.

The intervention that was indicated was to lose some weight and become more active! 

This was something that I had realised was a problem as I have seen my weight going up steadily since my transplant, my stays in hospital have compounded the problem. Steroids have also lead to me eating more than I would have done in the past.Losing weight was a better alternative than a possible operation that I thought I might be needing, so I counted myself lucky.


The day was good and despite the fact that I was stuck at Harefield I had a chance to meet up with some people during the day.
The first people I met were @DaisyAngel52 and her husband Dave.He has been having problems with reflux himself ,but hopefully will be getting his operation in the near future.They have been so supportive since my transplant and I wish them all the best and hope that their problems will be in the past very soon.
The second person was @ ClareLauwerys who I have been tweeting with for a while.We managed to meet up with during lunch time at the League of Friends cafe and I had a good chat with her

I hoped to leave quite early after I was given a month till my next appointment by the consultant and which was great. I had seen a surgeon about my scar before I left as a small area of it had become red and so he had prescribed some antibiotics which I had to collect from the pharmacy.
After we got the pills I got on the road quickly as there had been indications that many people might be travelling today for the Easter weekend ,as it was these reports were groundless and we got home really quick.

As we arrived in our village my phone rang and I received a voice-mail from the clinic to tell me that the consultant had requested my next appointment be made a week earlier. Only three weeks till next visit. I was disappointed but reasoned that this would not be too bad.
Then my luck changed, and not for the better. I got another phone call from the Nurse in clinic who told me that one of my blood results had shown problems they needed a repeat blood test to check for CMV just what I needed. It seems that I will be visiting much sooner than I thought in five days time!!

It seems that this rollacoaster after going up for while, has  gone in to a dip again. Hold on to your hats!

Let us see were this ride takes me now?